JuJu's lovely legs - an introduction to my littlest one

Meet JuJu. He was born with Caudal Regression Syndrome. Basically, my little guy is missing some of his spine, his hips are out of socket, two club feet, thin legs with very little muscle, very little rotation in the joints from his knees down, one kidney that is shaped like a pancake, and an ostomy bag.

In the dark of the.....day???

Wow, been a while eh? I didn't mean to hide myself away and stop posting, but my work ended up being overwhelming on a full time basis. When I was not at work, every free moment has been spent with little JuJu and my lover. :)

I can't really update what's been going on the past year (it's too much, alright?) but I can just begin again. That's the beauty of the internet!

The Seasons Never Stay The Same

Yesterday was yesterday, and today I'm feeling glum. I had a dream last night about my older son, dindin, that left me feeling a sense of loss so keen this morning that the effects of it physically hurt me. In my dream, I lost him. It wasn't the kind of losing someone that is in a big crowd or something, it's the kind of loss like in which I forgot that he was with me, turned around when I thought about it and realized it's been months since I seen him last and have no idea where he could be now. I woke up very upset and wondering what kind of mother I am. Regardless that it was a dream....it breaks my heart.